A lot has happened in the past three weeks. First, National OI Week went pretty well! I’m beyond blessed with all of the family and friends who messaged me on Wishbone Day to let me know they had yellow on to support OI! I’m incredibly grateful and couldn’t ask for a better support system. At … More Meeting with Pain Management
In honor of this last day of National OI Awareness Week I would just like to say that I feel as if us OI’ers are underestimated. There is no cure to OI and we have to deal with chronic pain often but I think that makes us pretty strong! We can do whatever we set … More Last Day of OI Week!
Another myth about OI is that people are always diagnosed with OI at birth. That is also false since not everyone shows symptoms of having OI. I’ve mentioned previously on my blog how people with Type I OI can die not even knowing that they have OI. That also leads us to believe that there … More OI Week Day 7
One myth about OI is that it is a disorder you have when you are a child, but once you hit your teen years, you grow out. That is FALSE. OI is a condition that you are born with and no matter what the severity or type of OI you have, you will always have … More OI Week Day 6
There are a total of 15 different types of OI. Within each type the disorder can range from mild to severe, although Type II is typically lethal before or shortly after birth. Type I is the mildest and the most common form of OI. It’s said that there are people out on the streets today … More OI Week Day 5
Dentinogenesis Imperfecta is similar to OI but affects the teeth. It causes your teeth to be a yellow-brown or blue-gray color because the tooth prevents the dentin to hold the enamel. Enamel is the part of the tooth that is the white and protective coding and without it, your tooth is brittle and will just … More OI Week Day 4
OI isn’t just about lack of collagen and broken bones; there are other health issues that are associated with OI. OI affects the part of the body that deals with connective tissues which may result in other health conditions. These include respiratory issues (asthma), easy bruising, Dentinogenesis Imperfecta, fatigue, short stature, chronic pain, loose joints/muscle … More OI Week Day 3
There are approximately 20,000-50,000 people in the United States of America who have been diagnosed with OI, which categorizes OI as a rare disorder. Also about 1 in 15,000 people born will be born with OI. However, there are suspected to be more people who have OI who don’t even know they have it because … More OI Week Day 2
According to the Osteogenesis Imperfecta Foundation, “most people with OI have a faulty gene that instructs their body to make either too little type 1 collage or poor quality type 1 collagen.” In other words, collagen helps keep the bones and muscles strong but those with OI are either collagen deficient or the collagen they … More OI Week Day 1
For those who don’t know, National Osteogenesis Imperfecta Awareness Week is May 6-13,2017! Every year OI Awareness Week always surrounds Wishbone Day (International OI Awareness Day), May 6th. Each and every year, I try to spread the awareness about OI, but now that I have a blog I thought that this year I will post … More Getting prepared for OI Awareness Week!!!