I’ve been asked several times why I named my blog “Living a Double Life.” Well, I’ll explain why. I don’t live a normal life and I feel like I am constantly feeling the pressure of blending in with others unless I want to get judged. I feel like I have two different lives, one that … More Living a Double Life
So I know it has been a while since I’ve posted but my life has been hectic with school and my life so I wanted to give you an update on what has been going on. I’ve been doing homework nonstop and it’s been overwhelming and stressful but I’ve been able to manage it so … More Update (Jaw alignment, physical therapy, school)
I’m so sorry that it has taken me a month to post! I’ve been extremely busy with doctors’ appointments and with the start of the new school year! I just finished my first week at the University of Cincinnati! It has been a very long and tiring week. I am a full-time student and have … More Back to School!
This past Thursday (July 27), I finally saw my geneticist after waiting three months for this appointment. I saw the same geneticist that I went to when I was a sophomore in high school. My orthopedist referred me back to see him so we could discuss what to do to try to strengthen my bones … More Geneticist
As many remember, I went to the orthopedist on June 27th to figure out what we were going to do about my hip and knee pain. My orthopedist wanted to avoid putting me through another surgery so he wanted me to get three steroid injections…one at the hip and two at the knee. The injections … More Steroid Injections
A lot has happened in the past three weeks. First, National OI Week went pretty well! I’m beyond blessed with all of the family and friends who messaged me on Wishbone Day to let me know they had yellow on to support OI! I’m incredibly grateful and couldn’t ask for a better support system. At … More Meeting with Pain Management
In honor of this last day of National OI Awareness Week I would just like to say that I feel as if us OI’ers are underestimated. There is no cure to OI and we have to deal with chronic pain often but I think that makes us pretty strong! We can do whatever we set … More Last Day of OI Week!
Another myth about OI is that people are always diagnosed with OI at birth. That is also false since not everyone shows symptoms of having OI. I’ve mentioned previously on my blog how people with Type I OI can die not even knowing that they have OI. That also leads us to believe that there … More OI Week Day 7
One myth about OI is that it is a disorder you have when you are a child, but once you hit your teen years, you grow out. That is FALSE. OI is a condition that you are born with and no matter what the severity or type of OI you have, you will always have … More OI Week Day 6
There are a total of 15 different types of OI. Within each type the disorder can range from mild to severe, although Type II is typically lethal before or shortly after birth. Type I is the mildest and the most common form of OI. It’s said that there are people out on the streets today … More OI Week Day 5