This past Thursday (July 27), I finally saw my geneticist after waiting three months for this appointment. I saw the same geneticist that I went to when I was a sophomore in high school. My orthopedist referred me back to see him so we could discuss what to do to try to strengthen my bones … More Geneticist

Steroid Injections

As many remember, I went to the orthopedist on June 27th to figure out what we were going to do about my hip and knee pain. My orthopedist wanted to avoid putting me through another surgery so he wanted me to get three steroid injections…one at the hip and two at the knee. The injections … More Steroid Injections

OI Week Day 7

Another myth about OI is that people are always diagnosed with OI at birth. That is also false since not everyone shows symptoms of having OI. I’ve mentioned previously on my blog how people with Type I OI can die not even knowing that they have OI. That also leads us to believe that there … More OI Week Day 7

OI Week Day 6

One myth about OI is that it is a disorder you have when you are a child, but once you hit your teen years, you grow out. That is FALSE. OI is a condition that you are born with and no matter what the severity or type of OI you have, you will always have … More OI Week Day 6

OI Week Day 5

There are a total of 15 different types of OI. Within each type the disorder can range from mild to severe, although Type II is typically lethal before or shortly after birth. Type I is the mildest and the most common form of OI. It’s said that there are people out on the streets today … More OI Week Day 5

OI Week Day 4

Dentinogenesis Imperfecta is similar to OI but affects the teeth. It causes your teeth to be a yellow-brown or blue-gray color because the tooth prevents the dentin to hold the enamel. Enamel is the part of the tooth that is the white and protective coding and without it, your tooth is brittle and will just … More OI Week Day 4

OI Week Day 3

OI isn’t just about lack of collagen and broken bones; there are other health issues that are associated with OI. OI affects the part of the body that deals with connective tissues which may result in other health conditions. These include respiratory issues (asthma), easy bruising, Dentinogenesis Imperfecta, fatigue, short stature, chronic pain, loose joints/muscle … More OI Week Day 3

OI Week Day 2

There are approximately 20,000-50,000 people in the United States of America who have been diagnosed with OI, which categorizes OI as a rare disorder. Also about 1 in 15,000 people born will be born with OI. However, there are suspected to be more people who have OI who don’t even know they have it because … More OI Week Day 2