Surgery…

I'm back! Today is first post back blogging and I'm happy to finally share what the past week has been like. As I have said in multiple times in previous posts, this surgery was in the making for 11 years. Being rejected by dozens of dental schools, hospitals, and private oral surgeons, I lost hope... Continue Reading →

Surgery Consultation

Surgery is only 8 days away and that's crazy to think! It seemed as if time has just flown by! I never thought I would see the day of jaw reconstruction being only 8 days away! It is a miracle and a blessing. I'm overjoyed and I'm enjoying eating whatever I can for the remainder... Continue Reading →

23 going on 12

I don't like to speak negatively about my health. For one, I don't want/like to play the sympathy card. I've had most of my health issues since birth so I don't know what life is like without them and I don't want people to feel bad or sorry for me. I believe that there is... Continue Reading →

Down to the Wire

My surgery is coming up and it can be a stressful process both pre-op and post-op. I've become accustomed to a certain routine that I follow to make sure everything goes smoothly and as stress-free as possible both before and after surgery. I scheduled my surgery back in August and made sure that I wouldn't... Continue Reading →

Angels and Saints

I'm a firm believer in guardian angels. I believe my great grandparents are my guardian angels and watch over me and are with me at all times. They make sure that I'm okay and safe and that nothing ever happens to me even if they aren't with me physically. Saints, on the other hand, I... Continue Reading →

Living a Double Life

I've been asked several times why I named my blog "Living a Double Life." Well, I'll explain why. I don't live a normal life and I feel like I am constantly feeling the pressure of blending in with others unless I want to get judged. I feel like I have two different lives, one that... Continue Reading →

Geneticist

This past Thursday (July 27), I finally saw my geneticist after waiting three months for this appointment. I saw the same geneticist that I went to when I was a sophomore in high school. My orthopedist referred me back to see him so we could discuss what to do to try to strengthen my bones... Continue Reading →

Steroid Injections

As many remember, I went to the orthopedist on June 27th to figure out what we were going to do about my hip and knee pain. My orthopedist wanted to avoid putting me through another surgery so he wanted me to get three steroid injections...one at the hip and two at the knee. The injections... Continue Reading →

Meeting with Pain Management

A lot has happened in the past three weeks. First, National OI Week went pretty well! I'm beyond blessed with all of the family and friends who messaged me on Wishbone Day to let me know they had yellow on to support OI! I'm incredibly grateful and couldn't ask for a better support system. At... Continue Reading →

Last Day of OI Week!

In honor of this last day of National OI Awareness Week I would just like to say that I feel as if us OI'ers are underestimated. There is no cure to OI and we have to deal with chronic pain often but I think that makes us pretty strong! We can do whatever we set... Continue Reading →

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